woman doctor

NBCI National Clinical Trials Strategic Plan (NCTSP) employs an interdisciplinary approach. We assist by providing critical education, data collection on all cancers, and help persuade our members to participate in necessary clinical trials to advance the science and improve health outcomes for the patient population.

Oncology is a medical specialty focused on the diagnosis, treatment, and prevention of cancer, a disease characterized by the uncontrolled growth of cells. It involves a comprehensive approach to understanding cancer's causes, genetic makeup, and progression to develop targeted therapies like immunotherapy, chemotherapy, and radiation. Oncologists utilize advanced diagnostic tools and personalized treatment plans, recognizing that each cancer has a unique genetic profile influencing its development and response to therapy.

What does oncology mean?

Oncology is the study of cancer. The word comes from the Greek word onkos, meaning tumor or mass. It is the branch of medicine that focuses on the diagnosis, treatment, and care of people with cancer.

Specialists trained in oncology provide care for people who are at risk for cancer, being treated for cancer, and living with cancer after treatment. Together, these specialists – along with other care providers like nurses, pharmacists, and social workers – make up your cancer care team.

What is an oncologist and what do they do?

An oncologist is a physician (medical doctor) who specializes in cancer. An oncologist leads a cancer care team in the care of people with cancer. Oncologists may:

  • Diagnose cancer
  • Make treatment recommendations and create treatment plans
  • Carry out or oversee treatment
  • Evaluate how the cancer responds to treatment
  • Coordinate a patient’s care with other members of the cancer care team
  • Provide follow-up care after treatment is completed
  • Conduct research through clinical trials
cancer

Oncology issues for African Americans include disproportionately high rates of certain cancers like multiple myeloma, lung, and oral cancer, stemming from systemic factors such as structural racism, targeted marketing of products like menthol cigarettes, and limited access to care. Communication barriers, implicit racial bias, and mistrust in healthcare also contribute to disparities in treatment and poorer outcomes, though structural changes and community-focused initiatives can help improve the situation.

Systemic and Environmental Factors

Targeted Marketing: Menthol cigarette advertising, which specifically targets the African American community, is linked to a higher risk of lung and oral cancers due to the presence of multiple carcinogens.

Structural Racism: Generational and ongoing systemic racism in the healthcare system contributes to disparities in cancer incidence and outcomes for African Americans.

Limited Access to Care: Financial barriers, geographic limitations, and a lack of healthcare facilities in some communities create significant obstacles to timely diagnosis and treatment.

Healthcare System and Provider-Patient Interactions

Communication Gaps: Physicians often spend less time on treatment planning, health education, and informal conversation with African American patients compared to White patients, leading to poorer communication and understanding.

Implicit Bias and Mistrust: Oncologists can exhibit implicit racial biases, while African American patients may have higher levels of mistrust in physicians due to historical discrimination, affecting their engagement in care.

Unequal Participation: African American patients may participate less actively in their appointments by asking fewer questions or bringing fewer companions, which can impact information exchange and treatment planning.

Clinical Trial and Treatment Disparities

Clinical Trial Bias: African Americans are underrepresented in clinical trials, leading to selection bias and results that are not generalizable to the entire population.

Missed Treatment Opportunities: The low enrollment of Black men in trials for prostate cancer has led to a missed opportunity to demonstrate potential benefits of treatments, such as abiraterone, for this specific population.

Outcomes and Specific Cancers

Higher Incidence: African Americans have a higher incidence of certain cancers, including multiple myeloma, with rates of about 19 cases per 100,000 men between 1995 and 2021.

Increased Myeloma Deaths: Tragically, over 2,500 Black Americans die from myeloma each year.

Melanoma Survival Rates: The five-year survival rate for Black patients with melanoma is 70% compared to 94% for white patients.

Solutions and Recommendations

Promote Open Dialogue: Encouraging open conversations and providing culturally tailored messages can destigmatize cancer and empower patients.

Increase Diversity in Care Teams: Having a diverse team of nurses, pharmacists, and medical assistants can improve the patient experience.

Empower Patients: Patients should bring a companion to appointments and feel empowered to seek a second opinion to improve outcomes.

Utilize Community Resources: Partnering with trusted community outreach organizations and patient advocacy groups can enhance access to culturally sensitive support.

Oncology specialties

cancer

While oncology is considered a “specialty” of medical care, there are specialized areas of oncology care, too.

Many oncologists focus on specialty areas based on how cancer is treated:

  • Surgical oncologists treat cancer using surgery, including removing part or all of a solid tumor and nearby tissue. They can also perform certain types of biopsies to help diagnose cancer.
  • Medical oncologists treat cancer using medication, including chemotherapy, immunotherapy, and targeted therapy.
  • Radiation oncologists treat cancer with radiation therapy, which uses high-energy particles or waves to destroy cancer cells.

Some oncologists specialize in caring for specific groups of people or treating certain types of cancer. For example:

  • Breast oncologists treat breast cancers in men and women.
  • Geriatric oncologists work with people with cancer who are age 65 and older to provide the best care for older adults.
  • Gynecologic oncologists treat cancers in the female reproductive organs, including the cervix, fallopian tubes, ovaries, uterus, vagina, and vulva.
  • Hematologist oncologists treat blood cancers, such as leukemia, lymphoma, and myeloma.
  • Neuro-oncologists treat cancers of the brain, spine, and nervous system.
  • Pediatric oncologists treat cancer in children and teens. They may also treat adults with cancers that are more common in children.
  • Thoracic oncologists treat cancers inside the chest area, including the lungs and esophagus.
  • Urologic oncologists treat cancers in the genitourinary system, such as the bladder, kidneys, penis, prostate gland, and testicles.

When do I need an oncologist?

If you have been diagnosed with cancer. When a person is diagnosed with cancer, they will likely be referred to a medical oncologist. Depending on the specifics of your cancer and possible treatment plans, they may refer you to a surgeon or radiation oncologist, as well.

If cancer is suspected. In some cases, a surgical oncologist might be the first specialist a patient sees to diagnosis and stage a cancer. Sometimes when cancer is suspected but not diagnosed, a medical oncologist might also be involved. Some people with blood disorders that may or may not be cancerous might be referred to a hematologist oncologist.

After you have completed cancer treatment. Many people will continue seeing their oncologist for follow-up appointments to check for signs of cancer coming back and to manage any side effects from treatment. Over time, these visits are usually needed less often. You might also go back to only seeing your primary care doctor or other health care provider.

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Other oncology professionals

In addition to oncologists, specially trained oncology nurses may give chemotherapy or other treatments, help manage symptoms and side effects, and provide patient education and support. Other health care professionals also provide specialized care and support for people with cancer, including:

  • Advanced practice providers (nurse practitioners and physician assistant/associates)
  • Patient navigators
  • Oncology social workers
  • Genetic counselors
  • Clinical pharmacists
  • Registered dietitians
  • Radiologists
  • Pathologists
  • Mental health professionals

Learn more in Who Is the Cancer Care Team. Each member plays a vital role in your care and will work with you and your caregivers throughout your cancer journey.

Who Is the Cancer Care Team?

It's common to have different medical specialists or health care professionals as part of your cancer care team. Understanding how your team works together – and how to talk with them – can help you and your loved ones know who to go to with specific questions or concerns.

Who is on my cancer care team?

Your cancer care team is the team of professionals who work together to provide care before, during, and after cancer treatment. Many of these professionals have had extra training that focuses on:

  • A certain type of cancer or cancer treatment
  • A specific area, system, or part of the body
  • Health problems related to cancer
  • Managing (coordinating) the patient with cancer’s care

Each member of the cancer care team completes education and training specific to their role. Many also have licenses or certifications to show they meet professional standards. They include medical doctors, nurses, and other health care professionals.

Medical doctors

Medical doctors (physicians) diagnose and treat health conditions. They may focus on certain types of cancer, perform specific procedures, prescribe treatments, or treat side effects and other health problems. Doctors may have an MD (Doctor of Medicine) or a DO (Doctor of Osteopathic Medicine) degree. Both must pass a licensing exam to treat patients. You may also see other letters after a doctor’s name, which show their special training, certifications, or credentials.

anesthesiologist [an-es-thee-zee-AHL-uh-jist]

A doctor who specializes in giving drugs or other agents (like gases) that can cause a total loss of feeling, put a patient into a deep sleep, or relieve pain, most often during surgery.

cardiologist

A medical doctor who is a heart and blood vessel specialist. People with cancer may see one if they have heart disease or treatment-related heart problems.

dermatologist or dermatological oncologist [der-muh-TAHL-uh-jist]

A doctor who specializes in skin diseases. A dermatological oncologist has specialized training in diagnosing and treating skin cancers.

doctor of osteopathic medicine or DO

A doctor with a licensing and educational background much like that of a medical doctor (MD) who is specially trained to use a “whole person” approach to medicine rather than just treating specific symptoms.

endocrinologist [en-duh-kruh-NAHL-uh-jist]

A doctor who specializes in diseases related to the glands of the endocrine system, such as the thyroid, pituitary, pancreas, pineal, and adrenal glands.

gastroenterologist [gas-tro-en-ter-AHL-uh-jist]

A doctor who specializes in diseases of the digestive (gastrointestinal or GI) tract.

gynecologic oncologist [guy-nuh-kuh-LA-jik on-kahl-uh-jist]

A doctor who specializes in cancers of the female sex (reproductive) organs.

gynecologist [guy-nuh-KAHL-uh-jist]

A doctor who specializes in female health issues, including sexual and reproductive function and the diseases of their reproductive organs, except diseases of the breast that require surgery.

hematologist [he-muh-TAHL-uh-jist]

A doctor who specializes in blood disorders (also called blood dyscrasias), including cancers of the blood and blood-forming tissues.

hematologist-oncologist [he-muh-TAHL-uh-jist on-kahl-uh-jist]

A medical doctor trained in both blood diseases and cancer care.

hepatologist [hep-a-TAH-loh-jist]

A doctor who specializes in diseases of the liver and bile ducts.

hospitalist

A doctor who works only in a hospital.

interventional radiologist

A medical doctor who specializes in radiology and uses imaging (x-rays, scans, and other types) to help guide minimally invasive procedures, like tumor ablations and embolization.

medical oncologist [med-ih-kull on-kahl-uh-jist]

A doctor who specializes in diagnosing and treating cancer with chemotherapy and other drugs. A medical oncologist is different from a surgical oncologist, who mostly treats cancer with surgery.

naturopathic doctor (ND)

A doctor who is not a medical doctor (MD) but is trained to use therapies that focus on supporting a person's self-healing abilities. Education and licensing of NDs varies by state.

neonatologist [nee-o-nay-TAHL-uh-jist]

A doctor who specializes in the care of newborn babies (until about 6 weeks of age, but often longer for babies who were born prematurely).

nephrologist [neh-frahl-uh-jist]

A doctor who specializes in kidney (renal) diseases.

neurosurgeon [nur-o-SUR-jun]

A doctor who specializes in operations involving the nervous system, including the brain, spinal cord, or nerves.

oncologist [on-kahl-uh-jist]

A doctor who specializes in diagnosing and treating cancer.

ophthalmologist [off-thuhl-MAHL-uh-jist]

A doctor who specializes in eye diseases.

oral and maxillofacial surgeon [max-ill-o-FAY-shul]

A surgeon who specializes in surgery of the mouth, jaw, and face.

orthopedic surgeon [or-thuh-pee-dik]

A surgeon who specializes in diseases and injuries of the muscles, joint, and bones (the musculoskeletal system).

otolaryngologist [o-toe-lair-in-GOL-uh-jist]

A doctor who specializes in diseases and injuries of the ear, nose, and throat. Also called an ENT (which stands for ears, nose, and throat) or a head and neck doctor.

pathologist [path-all-uh-jist]

A doctor who specializes in diagnosing and classifying diseases by lab tests and by looking at tissues and cells with a microscope. The pathologist determines whether a tumor is cancer, and, if it is cancer, the exact cell type (where it started) and grade (how fast it likely will grow).

pediatrician [pee-dee-uh-TRISH-un]

A doctor who specializes in caring for children and teens, including preventing illness, providing primary health care, and treating of diseases.

pediatric oncologist [pee-dee-at-trick on-kahl-uh-jist]

A doctor who specializes in caring for children and teens with cancer (sometimes up to age 21).

plastic or reconstructive surgeon [re-kon-STRUCK-tiv]

A surgeon who specializes in changing the way a body part looks or in rebuilding or replacing removed or injured body parts. In reconstruction (rebuilding body parts), the surgeon may use tissue from the patient or some special material with the right consistency to hold a shape or form over time. Also called a plastic and reconstructive surgeon.

primary care physician or provider

The doctor a person would normally see first when a medical symptom or problem comes up. A primary care doctor could be a general practitioner, a family practice doctor, a gynecologist, a pediatrician, or an internal medicine doctor (an internist).

psychiatrist [sy-ky-uh-trist]

A medical doctor specializing in the causes, treatment, and prevention of mental, emotional, and behavioral disorders. Psychiatrists provide counseling and can also prescribe medicines or other treatments.

pulmonologist [pull-muh-NAHL-uh-jist]

A doctor who has specialized experience and knowledge in the diagnosing and treating lung (pulmonary) conditions and diseases.

radiation oncologist [ray-dee-A-shun on-kahl-uh-jist]

A doctor who specializes in using radiation to treat cancer.

radiologist [ray-dee-AH-luh-jist]

A doctor with special training in diagnosing diseases by interpreting (reading) x-rays and other types of imaging studies that make pictures of the inside of the body.

surgeon [sur-jun]

A doctor with special training to cut or remove tumors or parts of the body affected by a disease. A surgical oncologist is a doctor who specializes in surgery to treat cancer. A thoracic surgeon is a doctor who operates on organs in the thorax or chest, including the lungs, ribs, the sternum (breast bone), the diaphragm (the muscle that helps breathing).

surgical oncologist

A doctor who specializes in using surgery to treat cancer.

urologist [yur-ahl-uh-jist]

A doctor who specializes in treating problems of the urinary tract (in both sexes) and the male reproductive tract.

Nurses

Nurses provide care for people with various health problems. Some work with a wide range of patients, while others specialize in certain areas, like cancer. The type of care and procedures they can provide depend on their license and level of training.

clinical nurse specialist (CNS)

An advanced practice registered nurse (APN or APRN) with a master’s or doctoral degree and special certification who works closely with the entire care team, and has advanced training and clinical experience in a certain area of medical and nursing practice. Oncology CNSs have many different roles, such as direct patient or family care, supervising staff, conducting nursing research related to cancer patients, or teaching about cancer, treatment, and side effects.

licensed practical nurse (LPN) or licensed vocational nurse (LVN)

A nurse who has completed technical training and has passed a basic licensing exam. They can check vital signs, give some medicines, observe and help patients with personal hygiene and care, and perform other health care-related tasks under the direction of a registered nurse.

nurse anesthetist

A nurse with an advanced degree and training in giving drugs or other agents (like gasses) that cause a total loss of feeling or relieve pain, most often during surgery.

nurse practitioner [nurs prak-tih-shun-er]

An advanced practice registered nurse (APN or APRN) with a master’s or doctoral degree and special certification who works closely with a doctor, helps to diagnose and manage care, and has advanced training and clinical experience in a certain area of medical and nursing practice.

registered nurse (RN)

A professional nurse who has completed a college program and passed a national examination. RNs may assess, educate, and treat patients, families, or even communities. They may work in and can get certified in almost any health specialty. They can also go back to school to become an advanced practice nurse (APN or APRN) such as a clinical nurse specialist, nurse practitioner, or nurse anesthetist.

Nurses can receive additional training and certification to care for specific conditions or patient needs. Examples include:

clinical trials nurse

A nurse who supports patients in clinical trials by teaching, monitoring, and managing care during a research study (clinical trial). 

enterostomal therapy nurse

A nurse who teaches people how to care for wounds or surgically created openings (like ostomies).  Also called an ostomy nurse or a wound care nurse.

home health nurse

A nurse who provides care in the patient’s home, including teaching about and giving medicines and certain treatments, and checking to see if the patient needs other medical care.

hospice nurse

A nurse trained in end-of-life care and symptom management as part of a hospice team.

infusion therapy nurse

A nurse who gives chemotherapy, targeted therapy, and immunotherapy. They teach patients, give treatments, and help manage any treatment side effects from infusion therapy. 

palliative care nurse

A nurse who helps patients and the cancer care team manage symptoms, like pain, nausea, or fatigue during any stage of serious illness.

patient or nurse navigator

A person who guides patients and their families through complex medical systems and helps them work with the rest of the cancer care team to overcome barriers to care that may come up so they can successfully complete their treatment. Navigators can be lay people with special training and experience or health care professionals, like nurses or social workers.

radiation oncology nurse

A nurse who is specialized in caring for patients receiving radiation treatment for cancer. They teach patients, give treatments, and help manage any treatment side effects from radiation.

Other health care professionals

Depending on your needs and location, your care team may include other health professionals besides doctors and nurses. Some of these professionals may work directly with your cancer care team at the same cancer center or hospital. Others may work in a different location and be brought in to help with a specific part of your care.

case manager

The member of the cancer care team who coordinates the patient’s care throughout diagnosis, treatment, and recovery, often working with the insurance company, and connecting the patient and family to resources.

chaplain

A member of the clergy who helps manage the spiritual needs of the patient and family and can usually address many denominations, faiths, and beliefs.

dietitian or registered dietitian [die-uh-TISH-un]

An expert in nutrition, food, and diet who has passed a national board exam. Many RDs specialize in areas like weight management, exercise science, cancer care, or cardiac rehabilitation.

discharge coordinator or planner

Often a nurse or social worker who helps make sure patients leaving the hospital have what they need to continue their recovery at home. They also may help a patient find other places to go after leaving the hospital, such as a nursing home or rehab, where they can continue to get the care they need.

dosimetrist [doe-sim-uh-trist]

A person with special training and certification who calculates and plans the correct dose of radiation therapy (the amount, rate, and how the dose is spread out) for cancer treatment and/or other diseases.

genetic counselor

A specially trained health professional who helps people understand the risk of a genetic disorder and if genetic testing may be helpful based on personal and family history. The counselor also meets with people who have had genetic testing to provide information about screening options and preventive measures based on the results.

hospice care specialists or team

Doctors, nurses, other health care professionals, social workers, chaplains, counselors, and trained volunteers who work together in a patient and family-centered approach. The work of a hospice team focuses on the physical, emotional, or spiritual needs of patient who is nearing the end of life and is no longer in active treatment for a serious illness.

nutritionist

A title sometimes used interchangeably with dietitian, but educational requirements for nutritionists vary by state.

occupational therapist [ok-you-PAY-shun-uhl]

A licensed and specially trained therapist who works with people who have functional impairments or limitations to help them develop, recover, and improve the skills needed for daily living and working. They also work to prevent disability and maintain health. The practice of occupational therapy includes evaluation, treatment, and consultation.

pain specialists

Doctors, nurses, and/or pharmacists who are experts in pain control. In many places there’s a team of health professionals who are available to address pain issues.

palliative care specialists or team [pal-ee-uh-tiv]

Doctors, nurses, pharmacists, and other health care professionals who work together to manage symptoms, such as pain, nausea, or fatigue. A palliative care team approach can be used for any patient (of any age) who has a serious illness. Palliative care teams can and often work alongside cancer care teams to help manage side effects during and after cancer treatment. These teams are often used to help patients during any stage of cancer, from diagnosis, throughout treatment, and to the end of life.

patient or nurse navigator

A person who guides patients and their families through complex medical systems and helps them work with the rest of the cancer care team to overcome barriers to care that may come up so they can successfully complete their treatment. Navigators can be lay people with special training and experience or health care professionals, like nurses or social workers.

pharmacist (RPh or PharmD)

A licensed health professional who has at least a bachelor's degree in pharmacy. Pharmacists help to make sure treatments and medicines prescribed to patients are safe and effective.

physical therapist

A licensed health professional, who has at least a bachelor’s degree in physical therapy, who helps examine, test, and treat physical problems, and uses exercises, heat, cold, and other methods to restore or maintain the body’s strength, mobility, and function.

physician assistant/associate (PA)

A certified and licensed medical professional with a master’s or doctoral level degree. Physician assistants practice medicine on teams with doctors and other health care professionals, providing a wide range of services. They may specialize in certain diseases or fields of medicine depending on their training and experience.

psychologist [sy-koll-uh-jist]

A health professional who has a graduate degree in psychology and training in clinical psychology. This specialist assesses a person’s mental and emotional status and provides testing and counseling services to those who may have an emotional or mental health problem.

radiation therapist [ray-dee-A-shun ther-uh-pist]

A person with special training to use the equipment that delivers radiation therapy. This expert often helps the patient get into the right position for treatment and then actually gives the treatment.

radiologic technologist [ray-dee-uh-LAH-jick teck-nah-luh-jist]

A health professional who positions patients for x-rays and other imaging tests, takes the images, and then develops and checks the images for quality. The films taken by the technologist are then sent to a radiologist to be read.

respiratory therapist [RES-per-uh-tor-ee ther-uh-pist]

A professional who works with people who have breathing problems. This can include breathing treatments and managing patients on ventilators (breathing machines). A CRTT or certified respiratory therapy technician may also examine the patient, collect information about lung function, and set up and maintain equipment, such as ventilators.

sex therapist

A mental health professional such as a licensed psychiatrist, social worker, clinical nurse specialist, nurse practitioner, or psychologist with special training in counseling people about sexual changes, problems, and communication (for example, after treatment for cancer). It’s common for a sex therapist to work with both sexual partners, rather than just one person.

social worker

A health professional with special training in dealing with social, emotional, and environmental problems that may come with illness or disability. A social worker may help people find community resources and support services, and provide counseling and guidance to help with issues such as insurance coverage, nursing home placement, and emotional distress. An oncology social worker is an expert in coordinating and providing help for the cancer patient and family, such as counseling them and helping to manage financial problems, housing or child care issues (such as when treatments are given at a facility away from home), and coping with different types of emotional distress.

speech therapist

A health professional who is specially trained to work with people who have speech and swallowing problems. Speech therapists help people learn skills to communicate and also make sure that patients can safely eat and drink. Also called a speech pathologist or speech/language pathologist.

Communicating with your cancer care team

It’s important to feel comfortable with your cancer care team. You rely on them for clear, helpful information to guide you through decisions. They rely on you to be open, honest, and to trust them. Together, you’re a team working to make sure you get the best care possible.

Talking with your cancer care team can sometimes feel overwhelming or intimidating. You might get a lot of information at once or feel confused by medical terms. You might even worry that asking too many questions seems disrespectful. But your cancer care team wants you to feel comfortable, ask questions, and understand your care and treatment.

Taking an active role

Being involved in your cancer treatment can help you get the best care possible. When you take an active role, it shows your care team that you’re open to talking with them and willing to consider their advice. Each team member brings different skills that can help in making decisions. They’re there to answer your questions, support you and your family, and help you feel confident and informed about the choices you make.

It’s also important to talk about how cancer will affect your life. Be honest about your concerns and habits, even the ones that are hard to talk about, like smoking, drinking, or drug use. The more your care team knows, the better they can support you.

How much do I want to know?

Deciding how much you want to know about your cancer and treatment is the first step in being able to talk comfortably with your cancer care team.

You may want to discuss everything and understand all the facts. Some people feel more in control when they fully understand their cancer, treatment options, and what to expect.

Or you may prefer small amounts of information at a time. Some people feel overwhelmed by too many details and would rather leave most decisions to their doctor.

Don’t be afraid to tell your cancer care team how much or how little you want to know. Letting your care team know your preferences helps them communicate in a way that works best for you.

Making the most of your appointments

Each doctor has their own way of helping patients learn about cancer and cancer treatment. That’s why the perfect doctor for one person may not be a good match for another. The most important thing to remember is that you can ask members of your team for information any time you need to. If you are concerned about something, ask. They are there to answer your questions, even if you need to ask the same question many times.

Asking questions

Don’t be embarrassed or shy about asking questions. There’s no such thing as a “dumb” question. If you have questions between doctor visits, write them down as they come up. Keep a notebook to help you stay organized.

If you’re not sure where to start, see Questions to Ask Your Doctor When You Have Cancer for ideas.

Remembering what the doctor says

It’s hard to remember all the things you’re told at each appointment, especially when you’re anxious, afraid, or feeling ill.

Even if the doctor carefully explains things, you might not hear or remember it all. Here are some things that can help:

  • Take notes on what your doctor says.
  • Ask if you can record your talks.
  • Take a family member or friend with you. Ask them to remind you of questions you want to ask and ask them to take notes, so you can focus on listening and talking directly with the doctor.
  • If nobody can come with you, consider asking the doctor if you can call someone on a speakerphone or video call during the appointment so that they can help listen, remember, and take notes.

If you need more details after your doctor has answered a question, say so. Sometimes, it’s even helpful to ask the same question again in a different way. There’s nothing wrong with telling your doctor that you don’t understand. If you want to learn more about your cancer or cancer treatment, ask your doctor to suggest some reading materials or trusted websites.

Make sure you understand any instructions you’ve been given before you leave the office.

Communicating between visits

You will see your cancer care team regularly during cancer treatment. But it’s important to know what to do if anything comes up between visits.

If you need a question answered between visits

Ask your care team how they prefer to communicate between visits and who you should contact if you have questions or concerns. Ask them:

  • What’s the best way to get questions answered that come up between visits? Phone call? Message sent via the online portal?
  • How long should it usually take to get a response?

Some doctors have a specific time set aside to return calls or respond to messages. Many times, a nurse or other member of your cancer care team can answer your questions, too.

What to do in case of an emergency or when the office is closed

Be sure you know how to get help any time you might need it. Ask your care team what changes you should call about during office hours and which ones would need an emergency call during times when the office is closed. Ask them:

  • Who and where do I call if I have a serious problem?
  • What are examples of serious problems I should call about?
  • When can a problem wait until the next day?
  • What about after office hours, on holidays, or on weekends?

What to talk about with your cancer care team

Besides the basics, like test results and treatment plans, there are other things you may want to talk about with your cancer care team. This can help you feel more informed, supported, and prepared as you go through treatment and beyond.

Access to your medical information

Make sure you know who will have access to your medical information. For example, whether your medical records will be shared with your other doctors.

Think about whether you want your care team to communicate only with you, or if they may also talk with your spouse, family members, or loved ones about your illness. If so, you will usually need to sign a form letting your doctor share information with the people you choose.

Your advance directive

An advance directive is a legal document that explains how you want medical decisions about you to be made if you cannot make the decisions yourself. If you have an advance directive or living will, be sure your doctor has a copy. If you don’t have them, ask how to create a legal document that contains instructions on the care you want if you become unable to make decisions for yourself.

Where to get more information about your cancer or treatment 

There are many places to find information, but your main source should always be your doctor and cancer care team – they know your case best. Online resources can also be helpful, but not all websites are reliable. Some may give wrong or even harmful information. Ask your cancer care team to recommend trustworthy websites to guide you.

Getting a second opinion

It’s normal to wonder if another doctor might recommend a different treatment. Getting a second opinion can help you feel more confident about your diagnosis and treatment plan.

In some cases, treatment needs to be started quickly and there may not be much time to get another opinion. Ask your doctor when treatment should start. If there’s time for a second opinion, ask them to help you get one. This is common in cancer care. They will not be surprised by the question and can often recommend other specialists for you to talk to before making a decision.

Side effects

People with cancer may have trouble with pain, breathing, sleeping, nausea, appetite, their bowels, feeling tired, or other problems. Ask your cancer care team what problems you should watch for and always tell them about any side effects you have. Remember, they can't help you with a problem if they don't know about it. Tell them:

  • What kind of problem (symptom) you are having
  • The time of day you notice the symptom
  • How bad it is
  • Where you feel it in your body
  • How long it lasts
  • What, if anything, makes it better or worse
  • How does it affect your daily life

There are also many kinds of emotional distress that go with cancer and its treatment. If you feel sad, overwhelmed, or hopeless a lot of the time and these feelings don’t go away, tell your care team.

If you keep having side effects after being treated for them, let your care team know what works and what doesn’t. Many people have to try more than one way to get side effects under control.

Handling problems or communication challenges

Sometimes, people have different communication styles, and this can cause conflict or concern. If you have problems talking with your doctor, there are often ways to make things better. Try to work out your concerns before deciding the situation is hopeless.

cancer

Tell the doctor what you need

First, tell your doctor as honestly and openly as you can what you’re worried about. Maybe you are worried that decisions are being made without your input. Or maybe you feel you don't have enough information to make decisions or that you don't understand something. These are understandable worries.

Here are some ways to start the conversation:

  • “I’m worried that we aren’t communicating well, and here’s why ...”
  • “I need to be able to talk with you about _________, and I feel like I can’t. Can we discuss this?”
  • “I realize that you’re very busy, but I need to discuss _________ with you. Can we schedule a time to do that?”
  • “I’m having trouble understanding ___________. Can you help me?”
  • "I'm worried that we are not making decisions together and that I don't have much say in my care. Can we talk?"

If you are unable to work out the problem with your doctor during regular visits, ask for a special visit to discuss it.

Talk to a third party

If things aren’t getting better, think about talking with a third party about the problem. For example, your primary care provider might be willing to discuss the matter with the cancer team. Sometimes, this is less stressful than facing the doctor directly, and their help could improve the situation.

It’s ok to change doctors

Sometimes, a doctor might not be the right fit. You don’t have to stay with someone just because you were referred to them or worry about hurting their feelings. Good communication, honesty, and mutual respect are important. If you don't feel that, it’s OK to find another doctor. You must do what feels right to you.

If you’re in the hospital

If you need to stay in the hospital, communication can become even more important. You might see different health professionals than you’re used to, and your cancer doctor might not be the only one talking about treatment decisions with you. It’s OK to ask questions or speak up if you don’t understand something or want to be more involved.

Being in the hospital can also be stressful. The routines may disrupt your sleep and schedule, and the constant activity can make it hard to relax. It’s normal to feel frustrated, or overwhelmed. If you’re having a hard time, let someone on your care team know. Nurses, social workers, and other staff may have ideas that can help. Some hospitals have patient navigators or volunteers who can support you during your stay.

If you’re not comfortable with how something is being handled, or if you’re having a problem with a doctor or staff member, talk to your nurse, a social worker, or a patient advocate. They can help you express your concerns and support you in getting the care and communication you need.